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Home Therapies Cardiac Pacing TEDxCambridge Talk Calls for Open Data from AIMDs

TEDxCambridge Talk Calls for Open Data from AIMDs

In this TED talk, Hugo Campos explains his frustration with the fact that his ICD collects data, but he – as a patient – is unable to access these data as a diagnostic tool to help make good choices about eating, exercise and other activities.

Hugo Campos writes:

“I have an implantable cardioverter defibrillator (ICD) for primary prevention of sudden cardiac arrest. I have been fighting for my right to access the data collected by the ICD for about 3 years now, without much success. Data about my heart is regularly collected from the implanted device by its manufacturer over remote monitoring.

The modern ICD is a sophisticated computer capable of detecting and treating malignant arrhythmias. It is also capable of wireless telemetry, a feature that is used by all device manufacturers for remote patient monitoring. Today, there are about 5 top manufacturers of pacemakers and ICDs and 1MM patients being remotely monitored on a regular basis. Not a single one of these patients is allowed access to their device’s data.

I am sure you’d agree that this is an objectionable practice and it must be stopped.”


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